Stephen Sutton Awarded MBE

stephen-story-stephen-sutton-MBE

I am truly delighted and immensely proud that Stephen has been recognized in the Queen’s Birthday 2014 Honours List.
Shortly before Stephen passed away on the 14th May he received a letter from the Cabinet Office asking if he was agreeable to accepting an MBE in recognition of his fundraising and services to the Teenage Cancer Trust. He thought it was an incredible honour to have been nominated and it definitely got the “thumbs up”.

The MBE is a wonderful recognition of his amazing charity work and dedication to the Teenage Cancer Trust whilst battling terminal cancer himself. It will help promote the continuing legacy of “Stephen’s Story which has created a wave of awareness, engagement and giving that will potentially transform what the TCT can achieve . Although Stephen continually told all of us that he didn’t do his charity work for recognition even he acknowledged that to be appointed a Member of the Order of the British Empire was “AWESOME”.

– Jane Sutton (Stephens Mother).

Wristbands – Posting This Week!

stephens-story-wristbands

stephens-story-wristbandsWe are very sorry but due to the recent circumstances and untimely passing of Stephen it has been hard to keep up with the orders for wristbands. Please rest assured they will begin to go out this week and be with you very shortly.

Thank you for your patience, understanding and more than anything your continued support.

– The webmaster.

RIP Stephen Sutton

image

Facebook Update Stephens Mum (12:00 – 14/05/2013)

My heart is bursting with pride but breaking with pain for my courageous, selfless, inspirational son who passed away peacefully in his sleep in the early hours of this morning, Wednesday 14th May. The ongoing support and outpouring of love for Stephen will help greatly at this difficult time, in the same way as it helped Stephen throughout his journey. We all know he will never be forgotten, his spirit will live on, in all that he achieved and shared with so many.
Love,
His mom x

Jason Manford’s Charity Comedy Club Night

jason

Earlier this week a last minute charity event held by Jason Manford sold out in just over 4 minutes, with both an amazing turn out and news coverage from SKY and BBC we managed to bring the total raised to over 3 Million.

Below is a short clip from the BBC detailing why Jason waisted no time in organising this special night.

jason

During this week some more photo’s and video clips will be avaliable on Stephens Website so come back and check.

image

Hi guys, it’s Stephen here again, and it feels so good to be able to put that. Currently I am feeling well and would describe my current situation as stable. Different people will put my recent physical improvement down to different reasons; I don’t want to over dramatise things too much, but I do just want to mention that everyone’s positive thoughts and support has been hugely appreciated, so thank you for that. The tumours in my body are still rife and dangerous, but I feel so lucky to just still be here, and in fact I feel completely privileged to be in this position where I can help make such a difference to others people lives.

The main thing I’ve always felt passionately about is helping others. My original goal was to raise £10,000 for Teenage Cancer Trust, but now with everyone’s help the current fundraising total stands at over 2.3million pounds raised- and it’s still going up!! I’ve always been a firm believer that people are ‘good’, and to see people come together for the cause recently in the way they have is incredibly touching and heartwarming. Thank you from me, and also thank you from every young cancer patient in the future who will benefit invaluably from the money raised!

Alongside fundraising I’ve always tried to help people in lots of other ways too. For example, I once did an event involving young people giving out free high fives, fist bumps, hugs, ‘sup nods and handshakes to strangers in the street. Not a penny was raised, but it importantly challenged people to think differently about things and hopefully brightened up their days a bit. I always describe my cancer as a huge kick up the backside that taught me a lot of good: the importance of helping others, of making every second count, of making sure life is for LIVING, amongst other things.

Last month I teamed up with Make A Wish Foundation to make a short documentary about my life and the things I have been doing recently. My wish was to share my story and positivity with as many people as possible.

The film was scheduled to be released this Tuesday, but with the current momentum of things I feel now is a great time to share it with you all! There have been a few minor tweaks to help keep things current, but here it is- I hope you all enjoy it!!

https://www.youtube.com/watch?v=MvG3ifEd0t0
youtube

The last few days have showed me truly how amazing people and the world can be. Feel free to help out once more by sharing the video link and sharing the positivity- thank you!! 

Live Comedy Show – 27th April

manford

Manford Comedy Clubs one night only charity event for Stephens Story, being held on Sunday 27th April at Players Bar – Birmingham.

All profit’s going towards Stephens Story, with the likes of : Chris Ramsey, Steve Day, Craig Murray and The Raymond and Mr Timpkins Revue and other special guests TBC.

Doors Open : 7PM

Show Starts : 8PM

Ticket’s Sold Out!

Skydiving For Stephen

Blog post thumbnail

Ladies and gentleman, I proudly introduce to you a huge upcoming fundraising event that you’re welcome to get involved in, wherever across the country you may be based…

“Skydiving for Stephen”!!!

For a while now I’ve been working hard to get this event off the ground (pun intended aha) but now it’s finally happening! On the 14th July 2014 I will be aiming to get a total of 251+ people to jump out of a plane with me!!

We will be aiming for a World Record Attempt for “The most amount of tandem skydivers in 24 hours” while also raising funds for the Teenage Cancer Trust.

ALL the information you need about the event and why you should take part in it can be downloaded by clicking on the link below:

Skydiving for Stephen details pack

Once you click on the link a PDF document should start to download straight away. If you have problems downloading or viewing the pack please email info@skydiving.co.uk to resolve any issues.

Please download the document and have a read through if you’re interested in taking part, or please just forward it to someone else who may be interested in it!!

Feel free to share this poster about with as many people possible too!!

General Poster

Additionally you can read through the core details below, please note all these details and more are included in the downloadable pack anyway:

Skydiving For Stephen
Stephen Sutton has been battling cancer since the age of 15. On January 7th 2013, shortly after finding out his disease was incurable, Stephen made a Facebook page called “Stephen’s Story” (www.facebook.com/stephensstory). On the page he outlined a bucketlist of 46 things he wanted to achieve in the near future. Since creating the page Stephen’s following has grown exponentially and he has inspired thousands of others with his positivity and passion for life. He has achieved more than most would in a lifetime; resulting in him winning countless awards in recognition of his inspirational work and most notably he has raised over £560,000 for Teenage Cancer Trust in just over a year. This is not a sob story, this is Stephen’s Story

Number 2 on Stephen’s bucketlist was to skydive. He has since done it twice and last year persuaded a large group of others to do it with him too. Number 34 on his bucketlist is to “Get my name into the Guinness World Book of Records somehow”.

Stephen’s next project involves recruiting more people to jump 10,000ft out of a plane with him in aid of Teenage Cancer Trust. He has applied to Guinness World Records for the “Most tandem parachute jumps in 24 hours” and the aim is to break this record, which currently stands at 251 people.

Who?

You or anyone you know is welcome – please spread the word and be a part of this special event. It will be involving people from all across the country coming together to raise a huge amount of money for Teenage Cancer Trust. If you’ve always wanted to skydive, now’s your chance!

Please note that there are weight, age and medical restrictions that may disqualify some individuals from jumping. Please download the rest of the pack above for more details.

Why?

This event is representative of everything Stephen and his fundraising is about:
1) Trying new things. Life is for living, don’t be afraid to try out new things and experiences
2) Having fun. Stephen always stresses there should be fun in fundraising. In the group of 55 he organized to do it last year all (even those who were apprehensive/scared) were glad they did it, and most described it as the best thing they’d ever done!
3) Helping others. It’s an amazing opportunity to raise funds for a great cause at the same time as enjoying yourself. One of the Stephen’s mottos is that the best way to help yourself is to help others – you will be raising funds for charity and making a difference you can be proud of.

You are invited to raise funds for Teenage Cancer Trust, a charity that has supported Stephen invaluably these last few years. He describes it as a genuine pleasure to have benefitted from the charity to the extent that he can now talk as freely and positively as he does about his
experiences, and as a result is hugely grateful to anyone who helps him out in his fundraising efforts. With your support Teenage Cancer Trust can continue to help teenagers like Stephen: offering practical, emotional and social support to young people with cancer at a time when they need it most.
In the downloaded pack is an official Teenage Cancer Trust Sponsorship Form that you can use to collect sponsorship funds with.

What?

Tandem skydiving provides the experience of a lifetime; it takes just 20 minutes to be briefed for your course and then you will jump harnessed to the front of a fully BPA qualified Tandem Parachuting Instructor and experience the thrill of 120mph freefall.
If you want to find out more about the actual jump process you can visit: http://www.skydiving.co.uk/tandem.htm

You can have your tandem jump filmed and photographed by a professional skydiving cameraman who will follow you and your instructor out in freefall. The package includes an edited DVD and a CD with digital photographs of your whole experience. The cost is £90 per person if you prebook (please note that this cannot be deducted from any sponsorship you raise, it must be paid for yourself). Due to the nature and set up of the record attempt, it is likely that Skydive Hibaldstow will only be able to cater for around 50% of jumpers having a video, so if you definitely want one we suggest prebooking it and will require a deposit in advance to guarantee a video package.
We will also be offering one free DVD and photo package for whoever fundraises the most for Teenage Cancer Trust.

Cost?

To confirm your booking, you will be required to pay a non-refundable deposit of £50 on registration.

Once the deposit has been paid, we request participants MUST raise a minimum sponsorship of £350 before the day of the jump.
From this £350 minimum sponsorship:
– £135 can be used to fund the remaining cost of your skydive (this is a reduced price relative to what you would pay as an individual jumper or in a smaller group).
– £215 will be donated straight to Teenage Cancer Trust.

Please note: it is important to recognise that although it seems you can be skydiving for almost free (i.e. by using the £135 sponsorship to fund the remaining cost of your jump your skydive) it will effectively be paid for by the charity and the people supporting your cause. As a result, you are more than welcome to pay for the rest of the jump cost yourself if you wish to, and we also encourage you so to raise as much as possible over the minimum sponsorship amount as any funds raised over the £350 minimum sponsorship will be donated straight to Teenage Cancer Trust.

When?

The record attempt is scheduled for Monday 14th July 2014.

To confirm your place we require the non-refundable deposit of £50 per person and standard
registration details by the 31st May.

If the record attempt is oversubscribed places will be allocated on a first come first serve basis. To help out with the whole running of the event it would be hugely appreciated if you could get your deposits and places secured as soon as possible.

Please note that skydiving is a weather dependent sport and so if overall the weather is not great then it may just not be possible to complete the record attempt on that day and it may be hard to reschedule for another day. If this happens we promise you will still get the chance jump at some point, albeit unfortunately not part of a world record attempt.

Where?

Skydive Hibaldstow (Hibaldstow Airfield, Hibaldstow [near Brigg], North Lincolnshire, DN20 9NN) will be hosting the event.
Skydive Hibaldstow operate their skydiving centre to the highest standards in safety under the regulations of the British Parachute Association. Their sky diving instructors have combined jump numbers in excess of 30,000 jumps and over 75 years experience. Amongst them they have British Parachute Association Advanced Instructors and Instructor Examiners who teach new skydiving and parachuting instructors all over the country.
If you wish, accommodation options are available if you wish to stay with them before or after your skydive, please call 0113 250 5600 or email info@skydiving.co.uk for more information.

How to take part:

1) Complete the ‘Skydiving Registration form’ attached at the end of this pack and send it to Skydive Hibaldstow by post or by scanning and emailing it to info@skydiving.co.uk with the subject heading “Skydiving for Stephen”, along with the non refundable deposit of £50. Alternatively you can book online at this link: www.skydiving.co.uk/regform-stephensstory. You can also book by phone on 0113 250 5600. Remember that the deadline for any registration is 31st May.
We encourage you to apply online as this should be the easiest and quickest method to register.
2) Start fundraising! Official sponsorship forms to collect donations from friends and family can be found at the end of this pack. If you choose to raise funds online, please use www.justgiving.com and join the fundraising team by going on this link
http://www.justgiving.com/teams/stephen-sutton-TCT once your page is made and clicking on “Join the team”.
If you choose to raise money online, you must notify Skydive Hibaldstow of this so that they can invoice Teenage Cancer Trust for the cost of your jump. The cost of £135 will be taken from your sponsorship total, so this will not be paid unless you have reached the minimum sponsorship of £350 ahead of the jump date.
If you raise money offline, you will need to take the minimum of £350 to the airfield with you on the day.
3) On the day of your skydive (July 14th) you will need to:
Arrive at the airfield at a designated time and register in the reception.
Pay the remaining balance of your skydive if this has not been done already.
Pay any offline sponsor money you have raised* if this hasn’t been done already.
Your sponsorship to Teenage Cancer Trust MUST be above the £215 minimum required (£350 minus the jump costs, as outlined in the cost section of this pack) and offline monies should be made out as a cheque payable to ‘Teenage Cancer Trust’ and the sponsorship form should be attached in order to claim Gift Aid.
If you are aged 40+ or have a medical condition you will also need to hand in your BPA Tandem Fitness form 115 signed and stamped by your doctor.
If you are aged 16 or 17 then you will need a parent present to sign consent for your jump.
4) Complete 20 minutes of training with your instructor.
5) Enjoy your Tandem Skydive!!

*We understand that collecting sponsor money may be difficult and that some people may not give you pledged monies until after you have completed the jump. In these cases, we can accept a post-dated cheque from yourself in payment for the minimum sponsorship. This will allow you time to collect the remaining sponsorship after you have completed your jump.
If you fail to reach the minimum sponsor amount, you will be expected to cover the remaining amount yourself or pull out of the event (you may then be required to return your sponsor money to your donors).
Any additional funds you may collect after you have completed your jump must be passed directly to Teenage Cancer Trust within 6 weeks of your jump. Failure to do so is considered theft.

Final note:

The emphasis on this event is about the unique tandem skydiving experience and fundraising for a great cause. Once you sign up you will be expected to jump at some point, even if the record attempt unfortunately cannot go ahead (e.g. due to weathers, numbers or other factors out of our control). Of course, achieving the World Record would be wonderful and we will try our best to achieve it, but it must be understood that unfortunately it cannot be guaranteed.

If you have any further questions you can contact Stephen at stephen@stephensstory.co.uk, or preferably contact Skydive Hibaldstow directly on 0113 250 5600 or email info@skydiving.co.uk as they are in the best position to answer any questions. A list of FAQ’s to do with the skydive can be found here: http://www.skydiving.co.uk/Beginners.html

stephensstory.co.uk is 1 week old!!

Blog post thumbnail

A week ago today I launched www.stephensstory.co.uk

Since releasing it the feedback I’ve had on it has been great and there’s been plenty of visitors on there! If you haven’t seen the site already make sure you have a quick look and feel free to share it with anyone else who you think may be interested in viewing it!!

I always try to limit the number advertisements on this page as the idea is that it is total non-profit, hence why I didn’t do this last week to detract from the original launch- but, on this occasion, I’d like to give a huge great big thank you and plug to David Alexander of Pixelloop for taking on this project and designing the site completely free of charge. The guy was a complete professional and although he said I didn’t have to, I’d like to give his company (visit www.pixelloop.org if you want to find out more) a shout out as I honestly can’t recommend him highly enough!

My latest results

Hospital Blog Update Thumbnail

Today I got the results from my most recent CT scan, but again the results are unfortunately not great: the tumours have continued to grow in size. The main spot they are now looking at is how the cancer in my chest gland progresses, the growth ass not been incredibly huge, but it is enough to suggest the current chemotherapy I have been having is not working and therefore not worth continuing with.

The plan now is to try yet ANOTHER (i.e. a 5th) different chemotherapy regime. The professor has mentioned numerous different drugs (old and new) we could potentially try but at the moment he’s undecided at the moment as to exactly what ones to use. He is putting a few feelers out to some drug companies to see if particular drugs are being or can be licensed yet, then seeing different ways we could access other different drugs, he’s also asking the opinions of a few other researchers about there thoughts on what might be the best ones to try (e.g. he is already in discussions about a potential trial at the Royal Marsden I could benefit from) and he will look into research further himself to see if he’s missed any other possibilities. My cancer is incredibly unique and especially at this stage in the journey there is no standard practise to follow. Although previous chemotherapies have not worked the professor thinks there is still some efficacy in trying another- I trust his judgement and as a result am content continuing the fight my end by receiving whatever medical treatment he thinks could benefit me. He will update me with his updated thoughts soon, and after a joint decision we will decide the best way forward.

The CT scan also identified a small blood clot in my leg. To deal with this I have been prescribed blood thinners- this will involve injecting myself with a needle every day which is pretty inconvenient, but I’ll just have to get used to it I guess.

The good news is that I’m still pretty calm and composed about everything, despite this most recent news.

I can’t change my cancer, all I can change is how I react to it, so I’m just going to react in the best way possible and continue to smile and be happy despite all of the unthoughtful and inconvenient things it’s doing!! 🙂

International Day of Happiness!!

Blog post thumbnail

I’ve just found out that today is the “International Day of Happiness”- oooooh! So:
1) It’s even more reason to join in with the “Silly Selfie for Stephen’s Story” trend that I started yesterday and posted about again just!
2) Make sure you do something today/this evening that makes you happy!
3) Feel free to watch and share the linked video about a feel good event I organised last year, consisting of me and 30 friends taking to the streets giving out free high fives, hugs, ‘sup nods, handshakes and fist bumps to spread some happiness to others!!